My Gastroparesis Story | Gastroparesis Awareness Month

I'M SO BLESSED TO HAVE FOUND YOUR VIDEO!!! I HAVE IBS/IBS AND RECENTLY HAD 2 FT OF MY COLON REMOVED. IM ON TRAMADOL & ZANAFLEX. I SUFFER FROM NAUSEA, VOMITING, BLOATING, CANT EAT VERY MUCH WITHOUT FEELING FULL AND IM ALWAYS SEVERELY IMPACTED! YOU HAVE HELPED ME SO MUCH!

Jenny, thank you so very much for sharing your journey. I have a family member just recently diagnosed. You have been more helpful & informative than the doctor. Can you share what foods seem to work for you and which you avoid and how you schedule meals in a typical day. We are basically completely overwhelmed at this point. Thank you & I do hope you are doing better and feeling better.

Thank you for this video. I’ve been suspecting that I have gastropaerisis and now I feel like I know what to ask for for diagnosis

This sounds like me. I was recently diagnosed with Gastroparesis. I’m 32 and have had been getting chronically sick-like vomiting 4+ week since I was 11. My symptoms becoming horribly severe in June of this year. I lost 30 lbs in about 6 weeks. I went a full 6 days unable to eat because I formed ulcers in my mouth and throat from all the acid from vomiting. I’m still in the process of getting a diagnosis as to why the Gastroparesis is happening. I’m concerned about ending up with a feeding tube. I’m struggling to keep food down and provide myself with the nutrition I need. I’m attempting a low-acid, semi-solids diet until my next appointment in November so…wish me luck! Thank you so much for posting this. I’ve felt so isolated for years and this makes me feel like everything will be ok.

I completely understand that feeling of both relief and almost mourning when you finally get a diagnosis. I also have hEDS and struggled for years with seemingly unrelated but debilitating symptoms. I was 41 when I got my gastroparesis diagnosis & 44 when I got my diagnosis of hEDS. I have been on TPN since January of 2018. I can eat small amounts & drink tea, coffee & carbonated water. Thank you for sharing your story. I know that you will help others struggling to be heard! 💚

Thank you so much for making and posting this video!

Thank you so much for your story. I’ve been through 7 years of hell and a very similar experience to you. Fortunately I have a great husband so haven’t ended up being sectioned. BUT omg this is a horrendous condition that should be taken seriously. I’m still waiting to be properly diagnosed with the gastric emptying test. I can’t Waite. Hig hugs and kisses to you my darling xxxx ❤️ Do we have to die to be taken seriously!!!!!!

Calling my doctor tomorrow to start the ball rolling- I have a lot to update them on especially as I’ve been unable to have any solids for a very long time but I’m so scared of what the process might be.

Thank you very informative 🤩🤩🤩💖💖

Thank you so much for this video. My boyfriend suffers from this condition but as Diabetic gastroperesis. I’m trying to learn and understand as much as possible so I can understand and help him. This video was so helpful 💜🥺

I wonder how long it takes for the episodes to get better after starting a light or purée diet?

I just watched a video of a surgeon who deals with this diagnosis. There is a new option within the last three years where they cut the muscle at the bottom of the stomach. And I guess it is quite successful. I will come back and post the link. You were so brave. It is so hard. I have Crohns and now I am having so many symptoms including fullness. I had surgery a year ago and apparently this can create nerve damage which can lead to gastroparesis. I am hoping it isn't the diagnosis as I have a lot going on. Thanks for sharing your experience!

This is really powerful testimony, Jenny. Well done xxxxxx

I’ve just found out I have this yesterday I knew something was wrong, I had an endoscope 18 hours after my last meal and gross bits of food where on show in my stomach I’m 55 I have CFS AS WELL

Thank you so much for sharing!

Thank you so much for sharing. My 18-year-old daughter was recently diagnosed. It’s heart wrenching to hear the process you went through to finally receive a diagnosis. Ours was lengthy as well but not quite as arduous. It’s helpful to know there are others out there that suffer and they are somehow managing, thank you again!

I’m at the 17 minute mark in the video my reaction to them sending you home with no help was literally wtf... I’m so sorry you had to go through that but sadly I’m not surprised. Hope you’re much better now

OMG////

How can you tell if you are malnourished? What are the symptoms?

Well done on getting through 💪🏻 can I ask what vitamins and minerals you take.