Being Diagnosed Autistic as an Adult - Autism Acceptance Month

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Published 2023-04-18
As April is Autism Acceptance Month, I thought I would make a video chatting about my experiences of getting diagnosed Autistic as an Adult. It's a bit of a chatty video where I just talk about how I was as a child, what the diagnostic process was like and how I feel now that I'm diagnosed. I hope others going through something similar might find it helpful to hear about another person's experience.

I'd love to read comments from other Autistic people, as I think it would be nice to share experiences. And please do also let me know if there are any other things you'd like me to cover in future videos!

Where you can find me:

Blog - www.jennycole.online
Facebook - www.facebook.com/JennyColeBlog
Twitter - @Jennycole04
Instagram - @Jennycole1988
TikTok - @Jenny_cole4
Pinterest - Jennycole44
Google+ - plus.google.com/+JennyColeJaffaCat/posts
Snapchat - Jennycole44

I try to be as clear as possible with my content. If I have been paid to create a video or share an item, it will be clearly marked as an AD. If I have been sent/given something with no additional payment or expectation to create content, it will be marked as AD Gifted. And if I have been invited to an event, it will be marked as AD Press Trip. All opinions will always be my own whether I have received payment or not, and I will only talk about products/services that I feel fit in with my channel/blog.

Music by Epidemic Sound (www.epidemicsound.com/)

I'd love to hear your comments and will reply to as many as I can. Due to my chronic illness, it can take me a bit longer to send replies, so please bare with me.

All Comments (16)
  • @user-yh9kc3xx5n
    I diagnosed last December for the first weeks I thought great things all make sense now...but since then I have been an emotional wreck getting my head around it.
  • @jutta3378
    Thanks you, Jenny, for telling your story. I was diagnosed a year ago today and am still adjusting to my newfound self knowledge and living as the "real me". Your story is very similar to mine. As I'm in my early 60s now I had quite a bit of grieving to do about the life I didn't get when I was younger and the adult milestones I never reached. However, I was very happy to receive my diagnosis as it gave me the explanation for why I struggled so hard throughout my life and I can now live the remainder of my life with greater self acceptance. Embrace your diagnosis and may you thrive as a wonderful autistic young woman.
  • @toni5543
    Hi Jenny, new sub from scotland here :). im 27, and ive been waiting for 3 years for my autism and adhd assessment. ive always struggled with my mental health and have always been incredibly bendy, accumulating strange injuries along my way. ive been treated for anxiety and depression since i was 17. i also experienced psychosis around 17 years old. i have undiagnosed dyscalculia and dermatillomania too. now it turns out i have EDS, and my doctor says it also seems like i have IBS and perhaps raynauds now too. its a wild experience.
  • Thank you for sharing! I have a provisional diagnosis of ASD from pain management programme in Bath. But my GP refused to refer me as he didn't agree. This was in 2014. You have inspired me to start advocating for myself again aswas diagnosed with hEDS late last year but still struggling with sensory overload, and social skills! Thank you! Xxx
  • @rosalindwebb7729
    Thank you for raising awareness and explaining. Wishing you a good weekend. Take care. ❤️🙏🌹
  • @ek7652
    Thank you for talking about this... I wish there would be even more studies and more awareness about the connection between EDS/HSD and ASD/ADHD. Because it seems to me that the majority of people I know who have EDS/HSD of some sort also ended up diagnosed with ASD/ADHD (but it's not so extremely frequent the other way around). I also want to add that I'm really happy for you that you seem to have a great psychiatrist who seems really informed/educated about these topics, that is really rare (or at least rare in my country).
  • Thanks for the hard working efforts you do in raising awareness of various illnesses and difficulties/ it makes us feel less lonely as a community. Thank you.
  • Hello sweetie, I’ve been watching this vlog for the third time in a row now…Your story sounds awfully familiar! I recognize so much of myself… I am going investigate further. I’ve said it before and I’ll say it again, your vlogs have been a tremendous help and source of comfort for me. I thank you from the bottom of my heart ❤❤. Much love from Holland!😊
  • @julie_uk_
    Nice to see you back. I was diagnosed at age 47 and ADHD at 49🎉
  • Yup, “not responding to tx” - so many therapists later - finally know I’m autistic at almost 60 💞🙏🏻🙏🏻🙏🏻💞👊
  • Really helpful video thanks Jenny. I have known I’m adhd for 5 or so years and it instantly made sense. Like you I don’t think I’m autistic but I need to go for a second opinion because I just kind of lied during the 6 hour assessment. I related a lot to what you had to say. Ps soon 36. Also made me think I’ll do more talking head videos without fear of it needing a lot of visual stuff or me painting etc
  • I am just realizing I'm autistic at 32. My autistic therapist agrees, but the wait list for the formal evaluation takes forever.
  • @tracirex
    welcome to the autistic community. one of the most helpful things i heard early in my self discovery journey is that we are not broken neurotypicals, we are whole autistics. there are wonderful resources for us here on you tube. Yo Samdy Sam is terrific if you are looking for a place to start. ❤