Gastroparesis Misconceptions

Other people: HOW DARE YOUR STOMACH BE PARTIALLY PARALYZED WHEN YOU'RE NOT UNDERWEIGHT?! Me: Do you even science?

I had a gastroenterologist tell me that because I hadn’t lost more than 10 lbs that I couldn’t be having the symptoms I was, then I finally got to 10+ lbs weight loss and he still was like well you just need to find the right foods and medicine combo...after I had a colonoscopy and ended up in the hospital from horrible nausea and vomiting, from dehydration suddenly people were a little more willing to listen....funny how it takes such extremes for people to listen, glad I finally found an EDS doc who listens and has helped me get back to a healthy state 😍

Myth-shattering videos like these are much needed in the chronic illness community, thank you!

I’m one of those people that eat the things I shouldn’t 🤣 every time I’m like 🤦‍♀️🤦‍♀️ but the food tastes good when I’m eating it.

Yes! I totally agree! The other day I was at a restaurant hooked up to my feeding pump. I went to the restaurant because my parents and my siblings were going and I wanted to hang out with them even though I couldn't eat anything. This random woman comes up to me and asks my Dad why I have a feeding tube if I don't need it. I tell her that I do need it because I have gastrparisis. She tells me that I am a attention seeking liar and that GP does not exist. She then rolls her eyes and walks off.

@5:20 I made an eating diary for a year to see which foods work best and they changed over time. There were foods I was able to eat for months and then out of nowhere they started making me sick. It’s so random.

I am 51 and I’ve had chronic constipation since I was a child as well as nausea and vomiting 🤮 issues. I have always had a very love/ hate relationship with food. I’ve dealt with eating disorders and weight issues. About five years or so ago, in the fall I started dropping weight for no reason. I was pretty excited at first I needed to lose some weight. Problem was I couldn’t stop it from coming off. Concerned, I went to the doctors office and was told that my body would level out. Three months later, I went back to the doctor, around 50 pounds later and weak as a kitten. I couldn’t even stand in the shower. Off to the GI doctor I went to receive my gastroparisis diagnosis. I was also sent to the endocrinologist for testing. She ordered a cortisol dumping test. I took one pill for the test and I haven’t stopped putting weight on yet. What a crazy dance this is. Keep your heads up and keep digging for your truth. 😊

Diagnosis misconceptions would be cool! Things like about how all diagnosis are bad, how its easy to get a diagnosis, that it will solve all your problems ect.

Omg. I remember when I went to camp as a counselor for kids with Crohn’s and another counselor had the nerve to ask me, “why are you so thin?! I have Crohn’s too and I’m not a stick figure.” I almost cried. People are so ignorant and cruel sometimes.

There aren’t enough hours to make videos on all misconceptions about GP.

I am newly diagnosed and I have had so many people already suggest herbs, vitamins, clean eating. I just want to eat ANYTHING. I am on liquids and have been for three months and even they make me nauseated.

Ok i LOVE this girl. Beyond strong. Legit definition of when life gives you lemons. Instead of letting all her health conditions etc make her upset she takes in everything and shares it with others. Thats the best thing for someone newly diagnosed like myself . Thnks for all you do sis

Maybe make a video about the misconception that disabled people are always happy to explain to strangers why they're disabled or why they're in a wheelchair. It's not my job to educate your kids when I'm at the grocery store and feel like crying from stress and pain

Who disliked this video? Its only 1 person and how dare they judge the illness in a negative way!

I actually had a woman tell me my hypermobility joint syndrome was caused by "leaky gut syndrome" and I needed to change my "toxic diet" so I could get better. I just shook my head at her and laughed! I didn't know what else to do.

I go see my gastroenterologist tomorrow to discuss getting new testing/meds. Your videos have really helped me better understand GP and EDS. Thanks for all you do!!

I have had gastroparesis since I was born and was recently diagnosed with hypermobile joint syndrome.

I am the perfect example I’m 6’ tall 265 lbs but I also had something like 65% retention at 4 hours on my gastric emptying study. It makes absolutely no sense. My gastroenterologist says he see’s it all the time of people overweight when he knows they’re calorie deficient.

Any ideas on why when doctors don’t have enough knowledge to know what’s really going on, they just say go to PT and then when you get worse from overdoing it or doing the wrong exercises, they say you’re not trying hard enough and blame you. Sorry for the rant but the journey has been very frustrating.

Just found your channel... so encouraging!! Thank you for sharing your story!