All about Ehlers Danlos Syndrome

Published 2022-03-23
In this video all about EDS I'll be covering
- What are the symptoms of EDS?
- What are the types
- What are the lesser known symptoms
- What conditions are associated with EDS
- The process of diagnosis
- Different treatments
- Research into EDS

P.S. The zebra is the symbol for EDS because when you hear hooves (a lot of the symptoms of EDS) you expect to hear a horse (many other conditions that EDS can be misdiagnosed as) not a zebra. The zebra represents EDS for this reason, as it it often takes a long time to put all the symptoms together!

Feel free to ask any question! References are on the end slide.

Disclaimer: I am not a medical professional. The Chronic Notebook should not be used as a substitute for medical advice. Always seek the care and opinion of your doctors.

All Comments (9)
  • @annab13
    The chronic fatigue is caused by having to tense your whole body up in order to keep yourself from dislocating or clicking painfully. It's from the extreme constant pain. It's from depression and how it affects your circulatory system. Your heart, blood, etc..
  • @megansnyd74
    Hi, Nia. Can I download the PowerPoint presentation used in this video? I am doing a research paper for University on EDS, and I need some example PowerPoint presentations to follow so that I can create one for my project. Thanks so very much for this information.
  • @cynthiabemis2959
    My son who had type 9 passed away at the age of 33 even though he had no heart problems his heart was the first to go
  • @cynthiabemis2959
    My son had type 9 e d s it started off with his bladder for surgery he had dental problems, he was knocked knee , his elbow looked like he was dislocated, he had problems with his hearing and problems with his eyes and he had a big head .
  • @vocalsunleashed
    Very interesting. Just your pronunciation of women is driving me nuts 😩 it's pronounced wi · muhn. Not like the singular woman