Why I was diagnosed with Classical Ehler's Danlos Syndrome

EHS is serious. Very. She went out.of her comfort zone to do this video to help others. I am thankful.

Thank you so much for this video. I’ve suffered for 31 years with no answers and today I finally met with a geneticist who felt comfortable diagnosing me with EDS. I’m getting tested next week to confirm what kind specifically but I’m thinking classical because I have ALL the things you do. It brought me to tears to see this because I’ve never met anyone that had the same struggles as me and I’ve never even had a name for it until today. Thank you so much for sharing

I have all the same things. And got tested. Nothiing turned up on DNA. So I got the hypermobility EDS diagnose four years ago. I am now worse then four years back. So It is very serious. Stay strong :)

Thank you so much for this video. It’s extremely helpful. I’ve had severe health issues since I was a child and in my early 20s spent years seeing doctors trying to figure out what was wrong. No consensus was ever reached, but I don’t remember EDS ever being discussed. Now, at 35, I have just learned about this condition and almost every single health issue I have ever had seems to fall into CEDS or HEDS. My mother and grandmother also have/had many of the same issues I do. Thank you for taking the time to share your experience and educate others. I will be speaking to my GP tomorrow and hopefully I will be able to see a specialist soon

I shared this video with my family after my diagnosis :)

Oh my god thank you so so much! This was so informative and there really isn’t another video that goes this into detail about their personal experience! Thank you again!

This video was very helpful. Thank you

Thank you for this very informative video! :)

Super helpful! Thank you!!

Wow, this was amazing. I have all of these traits you demonstated you have in this video with the exeption of like 4. My great-great-grandfather was also named Stewart and I also got blue eyes. A lot of My joints hurt all the time So I am going to see a doctor soon

Super helpful. Thank you.

Thanks for sharing! I got diagnosed with hEDS the only difference from our symptons are the scars, I have atrophic scars, but our skin streches the same, I didn't get a genetic test yet, hope u shared about ur testing =)

Hi! Who was your EDS specialist as I’m currently looking for one and this seems very informative and helpful. Thanks for the video <3 Much Love

I am getting genetic testing for EDS. I think I have classic type because of my scarring. And my joints have never dislocated. Thanks for your video. I didn't think my skin was stretchy but after seeing you I think it is.

WOW! I was able to do quite a few of those, but not everything. Hmmm, I wonder...🤔

My Neurologist was the one who diagnosed me with EDS. And I, too have Classical EDS, mine is type two. I have skin hypersensitivity and I also have widen scars, those “ bumps” that are on your arm are on my scalp and my wrist. That happens to me when I scratch my skin, too. Ugh, Brittle nails and hair, 👿! I have redness on my cheeks, likely due to our cEDS. Are you lactose intolerant or gluten intolerant? I am and I was lactose intolerant as a baby.

Really cool babe - thanks

I'm not hypermobile, but I have a lot of this. My skin is very stretchy, and I also have Raynaud's and dermatographism. Needless to say, my skin always shocks others. I discovered I also have a scar that is partially atrophic. I probably need to see a geneticist, but since I don't have serious symptoms, I don't want to be overdramatic.

Tongue backward is really hypermobile? I thought touching the tip of the nose with the tongue was... did not know the other things with the tongue were.

Where are you located? I need a dr in Louisiana or Mississippi or Houston