The Link Between MCAS, POTS, and EDS with Dr. Leonard Weinstock

If you’re looking for more information on this topic, check out my articles on drruscio.com/. And if you need extra health guidance, you’re welcome to work with us at the Rusico Institute: bit.ly/3JBkGei We’d love to have you.

I had extremely bad MCAS for 3 years . Due to Guardia (got a sick dog with it) & mold (I am a designer who was onsite of an old house remodel)…..all this at the time I got very ill. I was allergic to everything (light, smells, food & electro magnetic waves). I went to every mainstream Dr here in LA & wasted thousands of dollars. No Dr ever helped me. My throat was closing & I weighed 117 & never craved food & was constipated. My healing has been slow & steady & with the help of a holistic path & a few fantastic books. I also made a list & started checking off things…..house checked for mold, fillings taken out, vitamins, probiotics, meditation, low stress, exercise, clean water filtration, linen bedding, air filter, quality soaps & makeup, clean eating with no carbs or sugar. I am 60 percent better. I am still constipated & allergic to some magnetic waves in stores. Quercetin has been a life saver in being able to go into stores. My heart breaks for anyone looking for answers at the Dr office. Thank u for this video. Very helpful. I look forward to the documentary.

I am not trying to brag, but I have been using these therapies (bioflavanoids, high dose vit.C, bromelain and quercetin, anti-inflammatory foods) for myself for years to control my symptoms of POTS and MCAS. I’ve had many Dr’s gaslight me before I had my diagnosis, but followed my instinct and what I had learned through natural medicine to treat myself. My symptoms are practically non-existent now at age 53 verses 18 when I was miserable and suffered 2 anaphylactic episodes.
I also want to say that I do believe the depression and anxiety that seem to be co-morbid with this cluster, is not necessarily secondary as my brother who was suspected of having EDS, but never suffered in the way of pain, mostly allergies. He had chronic anxiety his whole life. He took his life in 2011.
My son also has had severe anxiety his whole life (starting at age 3-4) before we ever discovered he had EDS and POTS.
I think there is an underlying connection w/ the gut and autonomic nervous system that contributes separately to the mental problems.

Dr. Weinstock is my MCAS doctor and has been treating me for 6 years. We have had ups and downs, bit he has always been great and very helpful, but most of all caring.

Boy, I wish we had a universal health care system! I have been suffering all my life and cannot afford to go to anymore specialist! EDS, POTS, MCAS, chronic migraines, chronic GI issues, fibromyalgia, malnutrition, “cerebellar tonsillar ectopia” has me BROKE!! So tired of trying to get help in a broken system!

Dr. Ruscio, Thank you so much.

You saved hundreds of hours required to know/ research this valuable info.
❤❤❤

I have had major depressive disorder since I was 14, I'm now 20. I genuinely cannot remember a time within those years where I wasn't at least a bit depressed. I've tried so many different medications and they sort of help, but it always comes back in the end. That combined with anxiety, ADHD, and the MCAS and POTs symptoms really makes me wonder if my physiological issues have been caused by something physical this whole time

Late to this party. Fantastic video. Thank you for the content. A Dr with common sense and deep knowledge of the subject 👏

Thank you enormously, Dr Ruscio, for discussing the history of the publication's reception, including dates. THAT is the kind of information we need for critical thinking, especially when we like to entertain conflicting opinions.

Vitamin B1 can also be very helpful for POTS.

Some people are born with it. Some EDS folk have mutations on their collagen genes or genes that affect the collagen, and so from birth they do have it. MCAS can absolutely make it worse, like it is mentioned, but some folk really are born with it.

This has soo much useful information in, thanks guys.
I’m sure I suffered POTS when I was in my teens, I had a couple of years where I just kept fainting all the time… obvs ignored by the medical profession as they didn’t have a clue what was causing it, they put it down to my hormones. I’ve suffered allergies, eczema when I was young, then exercise induced anaphylaxis during my teens - 30’s, then the joint pain started in my 40’s and has never left me.
I’ve dialled in my diet (although I’m struggling to get my head around fodmap whilst still having a life!), not overweight although that’s been another lifelong battle. I was a fitness instructor and yoga/Pilates teacher, but have seen a steady decline in my ability to do any form of exercise since my early 40’s. Now in my late 50’s and really fed up with being in severe pain 24/7, my knees grind when I squat, there isn’t a vertebrae in my back that doesn’t hurt and I have brain fog. I’m sure MCAS/mould toxicity could be the key but all the docs want to do is prescribed NSAIDs which I refuse to take.
Sad to hear that yoga isn’t great as I’ve always loved it and it’s the only thing I still do (nowhere near how I used to). But aside from that, it doesn’t usually affect my mood and my ankles don’t hurt! 😂

Thank you so much! I was officially diagnosed hEDS less than a year ago. Recently diagnosed with POTS, MCAS... not fun at all. This information is greatly appreciate.

Took some antibiotics (flagyl) a few months ago and this started my nightmare. I am now housebound with symptoms of this triad. It is completely awful. I was a very active super healthy 33yo. Was given flagyl for a minor perioral dermatitis. I am now housebound, on disability and unable to walk my very active dog (she is just like how I was 4 months ago). I am losing hope. I have lost all of my muscles, my periods, 10 pounds, I have no collagen anymore, headaches, heart palpitations, POTS, EDS, MCAS and I do not want to live this way. I still cannot believe it. It’s a freaking nightmare. Flagyl is known to cause CNS damages, I was never warned about it.

Thank you so much, this information will help me to gain my health back

Recently on a 2 1/2 hr flight. Felt the vibration in my legs for 24 hrs

I was diagnosed with mcas last year but my allergist wasn’t knowledgeable about it I took steroid Zyrtec Benadryl famotidine hydroxyzine each day (and still do) I can’t eat because my stomach is paralyzed new allergist is starting me on oral cromlyn and xolair (I have classical like eds) I am extremely greatful for my allergist for helping me I haven’t been able to drink water since September 2021

Please have a look into zeolites. It seems to be wonderful to bind chemicals, heavy metals and... yes... Histamine!
Good point on mentioning trauma btw. The stress of it drives gut issues (and histamine) too.

Informative thank you

I would love to know the link between these three (MCAS, POTS, EDS) and Autism(ASD)/ADHD.