Classic-like Ehlers-Danlos Syndrome - Serwet Demirdas, MD, PhD
2020-04-16に共有
Slides used in this presentation are available in PDF from bit.ly/3dLU4FV.
コメント (12)
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Thank you for bringing awareness to this particularly painful, under-diagnosed disease!!
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Interesting content on EDS, great talk!
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Some of this flow was challenging for me! I have Eds and am currently exploring different types of dysautonomia. BUT even tho parts were challenging, it was my first time back doing yoga since I was diagnosed. I was told yoga was not a good option for me, even though in my past I did yoga at least twice a week! It used to make me feel strong! So thank you for introducing me back in and challenging me! And especially for your kind words and patience! Thank you:)
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How do we get a diagnosis? Most Drs don't know what this is or even believe us? I have almost every symptom
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Any idea what labs test for this? Struggling to find one......
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Thank you for sharing, wish doctors were better versed and learn how to prepare patients better for medical treatments and vaccines and to do detox since eds patients are so compromised, but really for any compromised patients.
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Interesting I have TNXB and collagen 12
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Thanks for this video! I did those websites genetic tests, it shows I have mutation on TNXB, not sure is enough for this EDS, I'm not sure what kind of EDS I have, but I do have shorts toes and slight scoliosis 😳
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What does type four mean
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YAK💔
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Don't know anything about this