Health check: Ehlers-Danlos Syndrome

I have hypermobile EDS. You go girl!

Interesting about the dyslexia , I recently read about how Autism is related to EDS and I'm an EDS patient and my son is Autistic.

this made me tear, all i can think about is my own self heart issues, but people who are able to think selflessly even when they know they are chronically ill are amazing

I have EDS too but haven’t found a doctor that knows anything or seems concerned at all.

She’s got vascular Eds. You can tell by looking at her. Poor kid. I have hyper mobile.

She is so wonderful! ☺️ Really inspiring

I love this!

How do I get tested for this syndrome?

🌹

I’ve been using 60 watt LED NIR/red light panels for 30 minutes on one side of my whole body and two weeks apart the other side and my tissues are going back to normal. My fingers used to go all the way back to my wrists and after two years I barely pass the 90 degree mark to even qualify for the Beighton score. My brain no longer bleeds, I get less brain fluid leaking from my nose, My heart is pristine and my pain is significantly decreased. I have a lot less other problems too and the only thing it seems to be negatively effecting are my eyes. For some reason even with steel goggles I’m getting ruptured veins in my eyes after red light therapy but the other benefits are so great I don’t want to stop🤕

Well i have eds, and knew i would die young, but not that young.