Issues With My Tissues (Feature length Documentary)

Thank you for making this documentary. This is the best thing I've found to share my diagnosis to family and friends. I cried through most of this because at 50 i was finally diagnosed. 30 years of hell in the medical community and the damage is as you might imagine. I can now share this and I will forever be greatful. I don't feel invisible anymore. Thank you doesn't seem enough to say but Thank you

You were a hero to all 🦓 for this. You continue to be a hero in your current role.

I was just diagnosed with EDS a little over a month ago. This documentary gave me hope during some of my darkest days.

Stubborn must be a side effect of EDS! I have a broken back and I broke my pelvis delivering my second child, but I went on to have two more kids. I'm still working too. Today, I'm getting over a lung infection, but I'm working my early morning shift at the radio station. Thank you for making this wonderful educational video! I feel like I belong somewhere. We are definitely stronger together. When I feel frustrated in physical therapy, I will think of you and your determination to keep going. Never going to walk a marathon though. Nope!

I was just diagnosed officially yesterday at the age of 46. I do not know why this illness did not present in this severity when I was younger but for 10 years I have had increasing pain that became chronic and limiting in 2020. After having a horrific flare that left me bedbound for 5 weeks in Feb I finally got diagnosed with hEDS at Mayo. I had never even heard of EDS until 2024. Your video is very inspiring because I do miss my old life so much and its so true about this condition making me live in the moment more. And that has actually been a silver lining for me.

Thank you Lara for bringing awareness to EDS. I was diagnosed this year at age 55. You are an inspiration!!

Thank you so much for making this documentary. It’s incredible. I was diagnosed with hEDS last year and this is the first time I’ve seen myself represented. This is such a great resource for others to gain a real insight and understand. Thank you so much for sharing this.

It made me very sad when at the EDS conference in Nashville you said people have said horrible things about you. I wish they would watch this video. You are amazing!

Something I thought about the other day. EDS was probably at one point a rare thing, but because of the lack of diagnosis in earlier generations, more and more people now have it and its not as uncommon because its been passed down so many times. Its been such an ignored syndrome and so undiagnosed that doctors don't see it for what it is. I was diagnosed at 31 after an entire life of doctors never knowing what's wrong with me, I was too complicated of a case. My own kids are now showing signs of EDS. It makes me sad but I'm also their biggest advocate now. Thank you Lara for all your amazing work and raising awareness and helping to make EDS more known around the world! You're so inspiring and amazing.

My mother died at 50, i was 20....in her bible was a slip of paper that made me cry 😢 all it said was...who will take care of Julie

Thanks Laura. I was diagnosed with EDS type II somewhere between 3-5 years of age. I am 47 years of age now. Thank you for spreading the news about Ehlers Danlos Syndrome.

Way to go Lara! Love watching the awareness you spread for us zebras. I was diagnosed at 34, only when getting my 3 teens tested. All 3 have it and its just a nightmare for us all. Keep going 😊

Congratulations Lara! Thankyou for spreading awareness of us zebras. I was diagnosed at 36 and my physiotherapist has advised that my hEDS body is better suited to interval type training rather than long-haul marathon type exercise. Never stop being active though or we lose the muscle tone that helps compensate for our ligament laxity. Sending spoons to fellow zebras out there to keep going with whatever challenges you are facing and for the goals you hold.

There's not words to express how grateful I am for you and all you do and that you made this documentary. I hadn't heard of EDS until last year and was diagnosed last month (using the classification you co-authored) at 27 after a year of increasing pain and limiting symptoms. I hadn't heard of you until today when I saw a targeted instagram ad. For the first time since I was a teenager I feel hopeful that I can push through and achieve whatever I want to. Thank you for sending out those ads to reach people like me. Thank you, thank you, thank you

Finally someone I can relate to. Thank you for your inspiring, real and raw doco it explains what we go through and the mental and physical resilience we need to have an ordinary yet exceptional life. Thank you 😊 🎉

I finally took leap. I sent this video and a long message to my family, in hope they will get tested, and also better understand me. I'm proud of myself, but I'm also shaking. Thank you for making this possible, Lara, I don't think I could have reached out without your help.

Thank you Lara, this was the most validating thing ive ever experienced. From seeing my same physical pain to hearibg your loved ones and doctors saying the same things mine say to me! Congratulations on being a EDS Warrior. Thank you for being just like me. I fell less alone.

I'm not ultra hypermobile and don't experience full on dislocations, but I do have subluxation in my shoulders and it's caused me severe chronic pain. I've been diagnosed with both heds and fibromyalgia.

Thank you for this. I've been motivated to reach out to a genetic counselor to see if I'm dealing with Eds like I presume I am.

Found this on my EDS Facebook page today. Will watch it tonight.