The Most Promising Drug For Long Covid You've Never Heard Of | With Dr Wes Ely

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Published 2023-09-04
In this film, the first of two - Dr Asad Khan and I ask intensive care physician Dr Wes Ely about how he became involved in Long Covid, what it takes to get large scale treatment trials off the ground, and why there’s one in particular he’s excited about - and we are too.

Resources:

www.thelancet.com/journals/lancet/article/PIIS0140…

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The Long Covid Handbook (Feb 2023) by Gez Medinger & Professor Danny Altmann (and published by Penguin Books) is now available in paperback, ebook and audiobook. A singular resource that brings together everything patients, clinicians and academics have learnt about the condition to date, as well as lessons from sufferers and researchers of ME/CFS and other chronic conditions. It offers world leading expert advice on understanding, managing and treating Long Covid. It is available from the following links.

US: a.co/d/0gvkJCU

UK: amzn.eu/d/9KjurGb

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All Comments (21)
  • @trishafrye53
    I am incredibly grateful for your videos. I hope and pray that, one day, all Long Covid patients will be heard, seen and treated.
  • @AlisaValdes
    Actually crying real tears as I watch this. The three of you are tireless warriors for all of us. Thank you so very, very much. I've been hanging on for years, hoping something comes along to make this misery tolerable. Godspeed, Dr. Ely.
  • @eileendilworth3256
    Thanks Gez for being one of the first to light a candle when we were all stumbling about in the dark.❤
  • @Gusski84
    The NIH has a long history of being spectacularly consistent rejecting ME/CFS research grants, perhaps now with LC omnipresent and thus undeniable those hitherto tightly drawn purse strings will loosen. Thx Gez for another excellent interview and thanks to Dr Ely for pursuing this line of research pro bono... the world needs more like you!
  • @klewis2048
    Dr Wes described by LC experience exactly. I was never hospitalised, I initially got better, then I completely crashed, physically and mentally. I've learned a lot from your videos Gez, so grateful.
  • @dianedavison2029
    As I’m reading all the comments I almost want to give a sigh of relief that I’m not alone in this fight. I have been sick for over 3 years now with every ailment you can think of and am currently getting over Covid again for the 3rd time… I almost threw in the towel because I’m so tired of being like this and if it hadn’t of been for God I I know I would of given up… this is an evil world we live in and to even consider to stay in the fight comes from Gods strength, not mine… find peace in the valley where it is very dark…GOD BLESS
  • @hugbloom2664
    For those without capacity to listen to the whole thing first, they talk about a Jak stat inhibitor and Immunomodulation, among other things. Hopefully I got those right, I'm not familiar with them yet. Interesting to hear about. Good to hear people doing research for the public benefit, lower income countries, and with long Covid patients' unique needs being considered during studies.
  • @janriggs8818
    I've had long Covid for three and a half years. I actually started crying when Dr Ely was talking about designing his study with long Covid patients on the panel, really listening to patients and putting in measures to protect the participants when they experience flares. Dr Ely is a light of hope that perhaps more doctors will share his humility and willingness to listen in the future. And thank you, Gez, for your three and a half years of giving all of us long-haulers the will to keep fighting this.
  • @honorburza9110
    This is fascinating. I was following Dr Wes prior to his LC studies about post ICU delirium which in itself was fascinating, and he also shares the story of his daughter’s brain damage. He clearly cares about patients and ending human suffering.
  • @AJansenNL
    It's great that Dr Ely is looking at the connections with ME/cfs.
  • @mindynewman9362
    A large hospital system in Chicago just asked me to be involved with a new study. The drug they were looking into is something many in LC community tried years ago. I’m so frustrated! I hope to see more forward thinking individuals like this to help us out of this hell.
  • @jacqz7520
    I’ve had #ME for 28 years. People like Dr Wes Ely & Dr Asad Khan give me back the hope I’d lost. I would so like to live before I die. I was 38 years old when I got ME after a severe virus. I’m now 66, & deteriorating. 🙏🤞
  • Happy to see some people in the medical community still working on LC. I was severely under the impression that it is being swept under the carpet.
  • @Skyfighter94
    Wes has long been a great advocate for us patients. So happy to see him on here!
  • @craigstewart2116
    Fingers crossed for Dr West, seems a great guy. If it means some of us can avoid going to bed every couple of hours then I’m all in. Good luck.
  • @esthertudor3092
    I have been sick for so long and Vanderbilt keep telling me it’s in my head. They ignore me. I have never been sick before covid.
  • @capnkirk5528
    Hey, that would be the FIRST miracle, a doctor who's actually LISTENING. (Apologize for the bitterness).
  • @FionaEm
    OMG I was going to ask if he planned to expand the trial to include ME/CFS patients bc of the crossover with LC. Those of us with ME/CFS have been neglected for decades!
  • @kim.in.nature.
    YAY! Can't wait to hear more about this trial! Pray that it CURES LC Thank you again Gez!