Strengthen Your Hypermobile Core - A Home Exercise Approach for EDS, HSD, and Hypermobility

FYI- she has a YouTube channel that includes a playlist of 62 exercise videos that are likely the bulk of the paid program.

I am from Switzerland so sorry if my english isn't so good, I understand it but not speak it x) Thank you for this webinar, I started the courses a few days ago (I do 1 day without the course between any session), and I started it with a very negative feeling (except for the fact it was gratis) : "I already try so much with my physiotherapists, it won't work", "I will probably hurt myself more than helping my body", "I will do it, but only for proving to my EDS specialists and my assurances that excercices doesn't work on me and everyone are so stupid", etc. When I did the first course, I had still a bit of negative feelings ("we almost do nothing, how should they expect to muscle me with that kind of stupid and unhelpful excercice ?") but I did it anyway, in a scientifist way : after the session, I did an excel tabler on my comptuter, write the excercice, quote the difficulty and the pain (1 : easy / not additionnal pain , 2 : a little difficult / a little extra pain, 3 : too difficult / to much pain) and next I wrote the details of what happend. That actually helped me see what are my issues during the course (I actually did the 3rd class today) and made me also see what I CAN do, even if sometimes it's a little difficult, with extra pain. When I did excercices with my physio, I didn't remember when I was home what excercice cause me pain, and with my proprioception issus, I was uncapable of explaining what the problem is, less reproduct correctly the excercice at home. With that class, even if I am not always sure doing it right (proprioceptive issues, and again, english is not my first langage so there might be subtility I don't quite get), I surprise myself doing much better than I thought I will. The webinar helped me not feeling guilty because I take 1 or 2 pauses during the session, because it is too difficult for my body or my brain, and I just need to move, drink, take a break before continuing the exercises. Emotionnaly, it is very important because when I can't do something the way I want, even if I know it is ok, I get frustrated and even can cry. This video with Jeannie saying "it's ok, do only 10 minutes or do only 1 over 10 of this movment" really rassure me. I will continue the class, adapting what is needed, and when the confinement is of, I will explain all of that to my specialist and my physiotherapist. I really thougt it will be a lost of time, of energy, maybe even dangerous to start this course but I was wrong. I don't know if my health issues will really improve, but at least I do my best, and after 8 different physiotherapists who tried to helped me with exercices (I don't count the other doctors), it was logical for me nothing could help me anymore. I think I was wrong and that is the fact that Ehlers-Danlos is so unknow, espacially in Switzerland, than everyone did their best but didn't have the knowledge about what to do or not do, it's not their fault. Every time, they say to me "I don't know. You know, I don't have to much EDS patient, oddly enough, they are all in the same family... ;)". That's why I spent a part of my time visionning the webinar of Ehlers-Danlos Society, that helped me so much to understand my desease, and if all goes well, my therapist will go to the next conference in Paris (it was reported because of the virus), so thank you for all your precious work. For all the zebras who read this, you are very brave, good luck with your exercices, and take really good care of yourself, you all deserve it ;)

I absolutely agree with Jeannie, every time I would try to do Pilates I always thought that most annoying and painful part of the exercises was the strain that is caused with the engaging of the core. It would cause tension, shortness of breath, headaches and just discomfort overall. I always loved the idea of Pilates and so I naturally adjusted exercises to make it more intuitive to my body.

Thank you! I really need this. Please keep this posted.

Thank you so much for sharing your very valuable expertise!

Thank you so much for the free program !

Thankyou Jeannie - I’m signed up for your zebra club and movement therapy 👍😍

Thank you ! ✨❤️✨🥰✨❤️✨💫

This is really good

Where do we find the free course? It seems like this video is describing the course but I do not see where to find the course.

I was sent this link by my specialist and it was described as linking to a safe at home PT exercises for EDS. Where are the actual exercises?

Thank you!!

Interesting

“Next few weeks” 😢😭 I really wish

I'm disabled and bed bound, so how can I afford this program? Are there payment plans available? Thanks

I've tried for 5 years to build my core muscles in physical therapy, and nothing is working. I'm getting weaker instead of stronger. What can I do?

The person reading sounds like Emma from Therapy in a Nutshell. It threw me off at first because I watched one of her videos first and almost didn’t even realize I was onto my next video!

"Its not the excercising that's wrong, it's the approach to excercising that's wrong". I completely agree! Just scrap all this pilates stuff and work on weight training (progressive overload using barbell excercises) and you'll actually see results. Unfortunately, programs like this are more gimmicky than effective.

Too complicated in verbiage, too wordy with medical words,have know idea what your talking about through out. Need to be a doctor to understand most of what your talking about !?!?😏😳☹️🙄